APTEPF’s mission:

To inform families, so they will receive better regular follow-up care, and better knowledge of medical progress.

To inform medical professionals, both General Practitioners and Gastro-Intestinal surgeons, about this disease, how it is passed on and it’s other systemic manifestations.

To represent patients and lobby governments.

During the 19 of its existence, the APTEPF Association has increased its menus of action and education by:

Designating regional representatives who take care of informing the public in their region and who are a local contact person.

Organizing annual regional information meeting with the participation of regional FAP specialists, whose conferences are recorded and made available to members of the association.

Creating this website, whish represents the activities of the association, links to other sites containing informations on PAF, and new developments concerning this disease.

Currently APTEPF is working on setting up a means of distance psychological support to its members.